Hello,
I realise now I can feel a LOT worse when I have been lying down and especially feel it after standing up, same for sitting then getting up and sometimes also with eating (stomach feels a lot worse afterwards too, for all these things), I feel much more tired, feel more sick and just heavy and not as focused, more so than normal, sometimes by a big amount.
It is interesting because I realise in the recent past when I had to get out of bed at night to use the bathroom I got back to bed and stomach felt worse and I probably felt more worn out, how I have to use a container as I just feel so bad getting up at night.
My blood pressure reading is normally around the 100 (low side of normal) mark for the top reading, in the 50s for second (so a bit low) and pulse is around 60s (low side of normal) but I think I remember reading on here on another thread (maybe even one I started) it could have something to do with with blood or heart or oxidative stress which I don't know what that is and can you get a finger thing to check some readings like you can with blood pressure.
In the last couple of weeks plus a day or two we have rented a wheelchair and I have gone out in it a few times and when I get out because the road is too steep to push me onto (so I'm out only for a few seconds) or when I actually get out at the end when I'm at home and I feel so much more tired and worse after getting out the wheelchair and I actually had to stop after four days in the wheelchair as it caused such a big crash afterwards.
Does anyone else experience this or knew what it is or what one can do? I have started to think me even standing up is causing problems or going up the stairs and it would be easier to be wheelchair bound for the most part and just getting up when nesercary, like going upstairs to bed, and maybe if I spent more time in a wheelchair just at home then I could be in a wheelchair out and about, the time I crashed I was out for 45 minutes but sitting the whole time bar a few seconds when I had to get out.
Thanks.
I realise now I can feel a LOT worse when I have been lying down and especially feel it after standing up, same for sitting then getting up and sometimes also with eating (stomach feels a lot worse afterwards too, for all these things), I feel much more tired, feel more sick and just heavy and not as focused, more so than normal, sometimes by a big amount.
It is interesting because I realise in the recent past when I had to get out of bed at night to use the bathroom I got back to bed and stomach felt worse and I probably felt more worn out, how I have to use a container as I just feel so bad getting up at night.
My blood pressure reading is normally around the 100 (low side of normal) mark for the top reading, in the 50s for second (so a bit low) and pulse is around 60s (low side of normal) but I think I remember reading on here on another thread (maybe even one I started) it could have something to do with with blood or heart or oxidative stress which I don't know what that is and can you get a finger thing to check some readings like you can with blood pressure.
In the last couple of weeks plus a day or two we have rented a wheelchair and I have gone out in it a few times and when I get out because the road is too steep to push me onto (so I'm out only for a few seconds) or when I actually get out at the end when I'm at home and I feel so much more tired and worse after getting out the wheelchair and I actually had to stop after four days in the wheelchair as it caused such a big crash afterwards.
Does anyone else experience this or knew what it is or what one can do? I have started to think me even standing up is causing problems or going up the stairs and it would be easier to be wheelchair bound for the most part and just getting up when nesercary, like going upstairs to bed, and maybe if I spent more time in a wheelchair just at home then I could be in a wheelchair out and about, the time I crashed I was out for 45 minutes but sitting the whole time bar a few seconds when I had to get out.
Thanks.