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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Latest activity
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Rufous McKinney posted a comment on the blog entry Nobody's Coming.I"m so sorry that you have to deal with this. And you're doing a great job. I am in the US, but we have some similar version of the... -
cfs since 1998 replied to the thread Was just prescribed both Tenofovir alafenamide and Tenofovir disoproxil.Hi Gzephyr, What are you trying to do exactly? If you are doing well (or not getting worse) on a particular Val dose, I would just stay... -
This is what my partner would say in the earliest days of their "crash" last December. We were both waiting for the alarm bells to be...
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ilivewithcfs replied to the thread Bromelain+NAC are really helpful to me.Right now it's too early to tell whether cistus is doing anything or not. I'll do the update, when more time passes. Thanks for the kind... -
mattie replied to the thread CAT Scan - Contract Dye?.I feared the contrast dye too, But did not give my any problems. -
I mentioned through text, but figured I'd add it here as well. When I was in the ER a year ago with H1N1, I was so severely dehydrated... -
Good point! I believe it's called "fluid overload" and the excessive edema can cause cascading organ problems throughout the body.
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ilivewithcfs reacted to Faith2007's post in the thread Bromelain+NAC are really helpful to me with
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I didn't realize I was supposed to be taking NAC on an empty stomach, so thanks. I've been taking 1590 mg NAC daily with a meal. I went... -
It’s truly atrocious. I’ve written about it much on my blog. I remember in the beginning years, thinking, oh they are going to come... -
This is what my partner would say in the earliest days of their "crash" last December. We were both waiting for the alarm bells to be...
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Zebra replied to the thread Iv saline treatments.Good point! I believe it's called "fluid overload" and the excessive edema can cause cascading organ problems throughout the body.
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Zebra replied to the thread CAT Scan - Contract Dye?.I've had, literally, countless CT scans with contrast and I've never had a problem that I could attribute to the CT scan itself or the...
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Gzephyr replied to the thread Was just prescribed both Tenofovir alafenamide and Tenofovir disoproxil.Thanks for the info Would you say it’s more likely my homeostatic balance being thrown off or simply the virus starting to replicate... -
GreenEdge replied to the thread Stomach Decline in Extremely Severe ME/CFS.OMG raw egg yolk works (discard the egg white). Rapid healing in just 1 week. Can I make a full recovery? Could someone else please... -
LLena9701 replied to the thread CAT Scan - Contract Dye?.I also had the dye (the iodine version) with incredibly severe mcas when I could tolerate about 5 foods total and was fine. I had to...